Raising a child with special needs: Want to know what is predictable?
Episode #32: Raising a child with special needs: Know what is Predictable?
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Do you want to know what’s “predictable” and “constant”
about raising a child with special needs?
What you will learn in this podcast:
[0:29] The only thing that is predictable?
[2:24] Know this and beware of it EACH YEAR?
[2:50] As our children progress, expect the following
[4:05] A few things that DID NOT work for me in my personal life and with my kiddo.
Do you know what’s “predictable” and “constant” about raising a child with special needs?
I’m living this lesson right now, in my own life, with my daughter. She’s getting ready to leave school and transition to the “next phase” of her life; which is hopefully a college program and working.
Our “Plan A” goals, visions, and mapped out path had a few twists and turns…AND….because of changes, our “Plan B” is currently in LIMBO!
And, just FYI, LIMBO is scary. It knocked me for a loop and it has caused anxiety for my daughter who prefers, likes, AND NEEDS routine. Needless to say, our whole household is anxious.
I’m sharing this because I know…that I know…that I know change is bound to happen.
Why? Because “stuff” happens.
Teams change, teachers change, schools change, principles change, districts change, rules change, and SPOILER ALERT, our children change, yearly!!
If each year, your family went to your favorite amusement park and rode the same roller coaster, you would know what twists and turns to expect. I like how author, Diane Linder (Beyond Words: Reflections On Our Journey To Inclusion), explains it:
Each year brings new expectations; each year brings a new ride, complete with twists and turns. While many students progress along a line, a straight line with a known slope, children with special needs do not.
They ride a wavy curve, and the parents and teachers have to learn to accept this.
It will be a bumpy ride–the ups and downs determined in part by progress. As our child progresses, expectations change. And, as they change we all must re-adjust.
Each year brings new teachers, new aids, new team members, and for a child with transition difficulties, this in and of itself is a challenge. Though the challenges change, the types of adjustments are similar.
We must all find a balance between high expectations and acceptance.
Finding a balance takes time and effort.
We can all handle the ride much better if we are able to learn from each other.
But think about the below quote…
Links mentioned in the podcast: