2018 Cover Winner: Allison & Cassidy
Allison & Cassidy Our cover photo is of siblings, Allison and Cassidy Weber (19/17 respectively). Cassidy has a brain migration defect, Microcephaly, Epilepsy, Scoliosis, Cerebral Palsy, is non-verbal, in a...
Advocating
Proud Moments: Matthew’s Endless Possibilities
Matthew’s Endless Possibilities As I drove with my son, Matthew… for the first time, he was the driver and I was his passenger (what an ironic metaphor for our journey)....
Siblings Are Special, Too
Sibling Bonds The bond between siblings can be a beautiful and powerful thing. It can be especially touching to watch your typical child interact with your special needs child. Whether...
“Instruction Manual” for Your Child with Special Needs
[Listen to Podcast] Do you have a detailed “instruction manual” for your child with special needs? Or, do you have an “everything binder” with information about all-things-your-child? Today, we’re talking...
Setting and Achieving High Expectations
Setting and Achieving High Expectations Marta and Sophie are both young adults with similar abilities. When dining out with their families, however, this is what occurs: Upon entering the restaurant,...
2018 Cover Winner: Joey Petruzzi
Joey Petruzzi Our happy family vacation “selfie” features Joey Petruzzi, age 28, along with his Mom, Liz, and his Dad, Mark. Joey has been diagnosed with Rubinstein-Taybi Syndrome and Autism,...
When Is the Right Time to Transition from Your Home to a Group Home?
Transitioning from Your Home to a Group Home and Independent Living for the Developmentally Disabled To gain some insight on transitioning from one’s own home to group home, we spoke...
Liz Petruzzi 3 Things I Did Wrong… and 3 Things I Did Right!
Liz Petruzzi In 1989, I gave birth to our first and only child, a son. Joey was born with a rare, genetic syndrome called Rubinstein-Taybi Syndrome. At the age of...
Enriching Your Child’s Sensory Environment Within Their Typical Routine
When addressing the sensory needs of your child it is important to be under the guide of professionals with a strong working knowledge of Sensory Processing, Sensory Pressing Disorder, and...
Where Do I Go for Evaluations
Evaluations Your child has just been given a medical diagnosis of a disability…OR… you suspect your child has a disability but are not sure. Now what? Many of us parents...
