A Mother’s Cry for Help!
Amidst our daughter’s ongoing journey with complex health challenges, we’ve encountered a labyrinth of systemic failures that leave families like ours struggling to navigate the gaps in critical support and care.
PSN Team
WHAT IS 22q?
In recent years, VCFS/DiGeorge/Sprintzen Syndrome—more commonly known as 22q11.2 deletion syndrome—is gaining recognition among parents and medical professionals alike due to its widespread impact on nearly every bodily system.
Did You Know About the Disabilities Education Act?
In 2004, IDEA reaffirmed its commitment under Section 1400 to guarantee that children with disabilities receive a tailored education aimed at equipping them for higher learning, gainful employment, and independent living. By emphasizing specialized support and fostering preparation for the future, the law empowers students with disabilities to achieve their full potential in adulthood.
The Many Gifts
Navigating the complexities of disability within a family is an intricate journey filled with challenges and profound moments of joy. My sister’s limited vocabulary masked her extraordinary capacity for love and understanding, teaching us invaluable lessons about empathy and resilience. Through adversity, she emerged as our brightest light.
Soeren Palumbo Fremd HS Speech 2/28/07
High schooler Soeren Palumbo delivers an insightful, heartfelt speech on navigating life’s challenges—essential for fostering empathy and understanding within our communities. This powerful message offers invaluable perspectives for anyone facing obstacles or seeking to deepen their compassion.
Guardianship Lingo
Establishing Guardianship: Ensuring Protection for Developmental Disability Rights As someone with developmental disabilities transitions into adulthood, establishing guardianship provides the necessary legal framework to safeguard their rights and well-being when they lack decision-making capacity. This critical step offers clarity on healthcare, finance, and personal matters while respecting individual autonomy as much as possible.
Mommy’s Timeout: Zion National Park
Take a time out and use visualization meditation to relax. Imagine yourself enjoying the gentle sounds of passing waters in the fresh air of Zion National Park. Take a couple...
Mommy’s Timeout: The Alaskan Mountains
Take a time out and use visualization meditation to relax. Imagine yourself here above the Alaskan Mountains. Enjoy the beautiful serenity of this bird’s eye view. Take a couple...