ADVICE NEEDED! Advice On Newly Diagnosed Children with Precocious

Real Moms Sharing Their Experiences and Advice

Please be advised that the information that is shared on this page is for general knowledge and information from parents and (some) professionals.

 ****THE INFORMATION CONTAINED ON THIS PAGE IS NOT INTENDED TO PROVIDE OR REPLACE MEDICAL ADVICE, OR TO PROMOTE, IN ANY MANNER, ANY OF THE MEDICINES/DRUGS. FOR DIAGNOSING A HEALTH PROBLEM OR DISEASE, PLEASE CONSULT YOUR DOCTOR OR MEDICAL ADVISER ABOUT MEDICAL DIAGNOSIS FOR PATIENT-SPECIFIC ADVICE.*****

Question: My daughter (intellectually delayed, SPD ^[1], ADHD ^[2])was just diagnosed ^[3] with precocious (early development). I’m kind of freaking out and wanting to know what to expect our how I can support my daughter. Any advice is greatly appreciated! Thank you! Also is it hard to get insurance to cover cost of hormone therapy?

Answers:

• Tanya K: My daughter had precocious puberty. We put her on the Lupron injection to delay puberty until she was on track with everyone else and then stopped the injection so she would progress with her peers. She has Cerebral Palsy. She was on it for 3 years and then we stopped.
• Jena T: How easily insurance covers vary based on company. Has she seen an Endocrinologist yet? There is a great book for girls, “American Girl Doll, called either Keeping of you or All about your body.
  All my girls had their own copy. My youngest started puberty early (so the 1 pages in the book about tampons, I ripped out).
•  Carrie W: How old is your daughter? My daughter started at age 3. Depending on what’s developing early is what they go by. So if just hair not to over worry!! Find a good endocrinologist!
• Carrie W: Usually they won’t do anything until breast buds appear.
• Gale VanpeltOne thing that I would make sure of is that you are able to get in touch with a advocacy person who will be able to assist you in making sure that your daughter’s needs are met, and that there is always an IEP in place ! and that you have meetings annu…See More
•  Charlotte S: My daughter, now 30, had PD. The results are she is short ( just under 5 ft. in a tall family) and she started her period early at 9. She took medication to stall that then started again about 12. Instead of increasing meds we just let her start as that was a more normal age for a period. Other than that no long term issues. The endocrinologist will help walk you through this. The shorter high was because her bones developed quicker and girls stop growing around 16. Her bones were 16 when she was 12, before her growth spurt. She is on the short side of average range but drastically short.
• Becky F: My daughter has the same diagnosis. Our problem is how she dealt with the emotional side of puberty and not understanding what is going on. she she knew she feels bad but not why I would recommend a good child psycologist as well.
• Carole C: The best hormone therapy I know for girls is wild yam cream – it acts like progesterone (the happy hormone) and it is easy to apply. I use a powerful 500 mg version from NSP but they have a lighter, 5 mg version, too. It is not very expensive and I use it on both my girls (11 and 15 yrs old).
• Trichia T: It’s important for the doctor to write a prior authorization explaining the importance of the hormone therapy.
  How old is she? You want the doctor to stop the process until she age ready.
• Tedra B: My daughter is 9 but functions as a 3 months old (shaken) she has pubic hair and arm pit hair no breast buds which Dr says will happen before anything truly begins we have an appointment with an enchronologist to discuss a plan.
• Shannon B: where i live i have a county dd they have social workers that refer me to the help and funding available also if you google diagnosis that should bring up info ??? idk if this helps state to state is different along w/ counties
• Jacks B: my daughter was born at 28 weeks and has hydrocephalus which the dr said probably contributed to the precocious
• Jacks G: We have seen an endocrinologist just this Friday. The dr needs to do more blood test but said she will need hormones and will be on the shorter side since her bone age is 10 and she is 7. I’ve noticed her mood has definitely changed… very moody. I don’t think she even knows that she’s acting this way as she gets upset very easily, developmentally she is still VERY young. And in addition to precocious she had Hashimoto disease. So kind of just taking this all in.
•  Mary S:My daughter has opposite problem, her endocrine Dr. And I decided not to do anything, get a referral to endocrine Dr and discuss the best options for your child
• Debra G: I am not sure about the insurance part but I was head injured at age 7 and had the same thing and had shots for it and they stopped it until age 12. I started shots daily and then they started monthly and every three months.
• Carrie W: Feel free to ask me anything ! Praying for you and ur daughter
• Barbara J: You ladies are so fortunate to have this medium available! Parents are the BEST way to serve your kids. In the 90’s we took classes (Parent networking/advocacy etc) the government funded. Loud voices are needed to keep us ahead and the kids keep us busy; this is great; quick answers and our children are diagnosed, treated and we want answers YESTERDAY. Be supportive of each other ESPECIALLY when disagreeing.
• Pamela T: The thing about Insurance…….They Want to keep their money. Good Luck. Mrs T
• Maggie B:How old? This is becoming a major problem for many. Possibly an ecological component? Very scary.
• Dawn M:One your daughter is not old enough to understand what the shots are for, and 2 change Drs

  ADVICE NEEDED for Special Mom shared from Facebook post #psnmoo950 ^[4]

Helpful Articles

• Handling Your Child’s Diagnosis: Six Things Parents Should Do For Themselves ^[3]
• 8 Ways to be a Great Advocate For Your Family Member With Special Needs ^[5]
• Coping with the Life You Never Imagined ^[6]
• How Do You Talk to Your Child About Their Diagnosis? ^[7]
• Developing Your Own Network ^[8]
• Sex Education: Teaching the most vulnerable ^[9]
• The Importance of Teaching Children Body Safety ^[10]
• Puberty and Hygiene: How to Support Our Children ^[11]
• A Complete Guide on Dental Care for Children with Special Needs ^[12]
• Summer Internet Surfing Keeping Kids Safe Online ^[13]
• Surgery Survival ^[14]

You May Also Like

• A PATH to the Future ^[15]
• How to Get Free From Unrealistic Expectations of Motherhood ^[16]
• I Do Not like Being a Special Needs Parent and That’s OK ^[17]
• Being United, Pampering, and Taking Care of Ourselves ^[18]
• Financial Planning: For Those Who Are at the Starting Line ^[19]
• Miracle Babies What You Need to Know ^[20]