Evaluations
Your child has just been given a medical diagnosis [1] of a disability…OR… you suspect your child has a disability but are not sure. Now what? Many of us parents have been lost and confused when it comes to a medical diagnosis for a disability or when we suspect our child has a disability, let alone what exactly that means for our child in the educational setting. Where do we go from here?
Getting our Children Help
We do know that the earlier we get our children “help,” the better it is for them. Does it matter how old your child is? No. Under IDEA 2004 (Individuals with Disabilities Education Act), “the primary purpose … is to ensure that all children with disabilities receive a free appropriate public education, including special education and related services that are “designed to meet their unique needs and prepare them for further education, employment and independent living …” 1 For our babies and toddlers under 3 years of age, Part C of IDEA is the Program for Infants and Toddlers with Disabilities. Part C is a “federal grant program that assists states in operating a comprehensive statewide program of early intervention services for infants and toddlers with disabilities, ages birth through age 2 years, and their families.” 2 Early Intervention [2] programs would be coordinated by a lead agency that “is responsible for ensuring that infants and toddlers suspected of having a disability are identified and that the various agencies involved have a referral system in place. Once a referral is made, a service coordinator is appointed and must complete an evaluation within 45 days.” 3
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Services received under Part C of IDEA
This means that our children thru their 3rd birthday can receive services under Part C of IDEA. If eligible, your child will have an IFSP (Individualized Family Service Plan) agreed on by the agency and you as parents, written, and then services will begin. Many times, services are provided in your home and the family is involved. At age 3, like us, we transitioned from Part C to Part B, and again, our daughter was evaluated under Part B. These evaluations will show your child’s eligibility and indicate their strengths and weaknesses. An IEP (Individualized Education Plan) will be written and services will be initiated.
Child Find and qualifying for Services
Child Find is the agency that is a “component of IDEA that requires states to identify, locate, and evaluate all children with disabilities, aged birth to 21, who are in need of early intervention or special education services. This includes all children who are suspected of having a disability, including children who receive passing grades and are “advancing from grade to grade.” The law does not require children to be “labeled” or classified by their disability.4 So if your child has not been medically diagnosed with a disability (by a doctor) but you suspect he/she has a disability, he/she could qualify for services. Your child would need an evaluation so you could contact Child Find in your state. Child Find is housed under the Department of Education in each state and you can find your state’s DOE info at http://www.yellowpagesforkids.com/help/seas.htm [4]. In Florida, parents can contact FDLRS (Florida Diagnostic and Learning Resources System) for an evaluation.5 Parents can also contact your child’s school and request evaluations.
Let’s clear up any Confusion about “medical” and “educational” Diagnosis?
Confused about “medical” and “educational”? Me too! Your child can have a medical diagnosis but in the educational setting, “to be eligible for special education [5], a child must have a disability and must need special education services and related services.” It sounds confusing, and at first, it was. The medical diagnosis is just that – a medical explanation for what is going on with your child. But the doctor does not know how the disability will affect your child in school across all settings. That is what the evaluations are for – to see how your child is affected in school, and that includes travel on the bus if your child uses the bus. I tell parents that if you have a medical diagnosis, to bring that letter from the doctor to the IEP meeting and request evaluations to include that area so that you can see how your child does “assessed” to his/her typical peers. (For us, our daughter is medically “legally blind” and we had to have evaluations in school to see where her weaknesses are. Once we know those weaknesses, then we can agree on the services, write the IEP, and have services & related services provided).
The above is the technical info and I wanted to include it so that you as parents would have the resources and know how to advocate for your child. Remember you are the parents and your child’s first advocate. If something is not sitting right in your gut, follow your gut so that your child can receive the Free Appropriate Public Education he/she is entitled to until his/her 21st birthday! Your child will learn from you!
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- http://www.wrightslaw.com/info/child.find.index.htm [7]
- http://www.wrightslaw.com/info/ei.index.htm [8]
- http://www.fdlrs.org/ [9]
Doreen Franklin is a Special Education Consultant & Private Tutor. She assists families with children with special needs with their IEPs. Doreen & her husband adopted two daughters; both are special needs. Doreen homeschooled their older daughter and tutors children privately.
https://www.parentingspecialneeds.org/article/early-intervention-first-steps-in-the-right-direction/
https://www.parentingspecialneeds.org/article/disability-acronyms-abbreviations/
Helpful Articles
- Handling Your Child’s Diagnosis: Six Things Parents Should Do For Themselves [1]
- 8 Ways to be a Great Advocate For Your Family Member With Special Needs [10]
- A Review…What Is Special Education [5]
- The Politics of Special Education: The Information You Need Right Now [11]
- Special Education & Disability Acronyms / Abbreviations {Tip 23 of 31} [12]
- Early Intervention: First Steps in the Right Direction [2]
- Whether it’s Your First IEP or You’re a Pro: 10 things to Cover at the Meeting [13]
- Special Education: The Pros and Cons of Public vs. Private School [14]
- When Conflict Arises What Steps Can You Take? [15]
- What Is the Purpose of Least Restrictive Environment? [16]
This post originally appeared on our January/February 2018 Magazine [17]