Have you ever heard of Supported Decision Making? No? Don’t worry, we hadn’t either. But, this is something that is an important consideration when dealing with a loved one who is living with a disability. We reached out to Attorney Amanda Heystek (Director of Systems Reform/Disability Rights Florida [1]) who was kind enough to explain in greater detail what it was.
What is Supported Decision-Making?
Supported decision-making is a process (a formal or informal method) in which individuals with an intellectual or developmental disability (I/DD) are assisted in making decisions for themselves. Supported decision-making happens when an individual with I/DD is the decision maker but is provided support from one or more persons who explain issues to the individual in a manner that he or she can understand. There is no one model of supported decision-making.
Families might wish to consider this…
This process provides them with the information in a way that they can understand, from people that they trust, so that they can evaluate what decision to make. In other words, they receive the information from people they trust, those people provide an outline of the pros and cons of all the different decisions that could be made for a specific scenario or problem. Then, the person with the disability makes the decision based on their own judgment, but with the advice of others. Therefore, if a family has not chosen guardianship, this could be something that they would look at: As long as the person in question understands what the problem is, understands the options, then they can make those decisions. For example: if someone had a sore throat, they would go to the doctor. The doctor would advise to either remove one’s tonsils OR, take medicine to eliminate the bacteria that is causing the soreness. As long as the patient understands the options as they are explained to them, they are able to make a decision on their own. If you want to know more about Supported Decision-Making, supporteddecisionmaking.org [2] probably has the best definition.
How do we get advice?
Basically, it’s the way we all make decisions: If you want to buy a house, you might talk to a realtor. If you want to invest in some stock, you might talk to a financial adviser, etc…Everyone gets advice or further information from what we would call “subject matter experts”. But, for a person with a disability, they’re kind of getting more than just a subject matter expert, they’re getting the person who knows them best to help them understand the problem and communicate the options to them.
Remember, Supported Decision-Making can be formal or informal. In the case of Mr. Lincoln, a Supported Decision-Making agreement was entered into which is “like a contract” where he basically tells the people in his life, “I’m going to rely on you and I’m going to make the decisions, but I will consult you.” In this way, everybody understands what his rights are and everyone is there to support him
Supported Decision-Making is recognized elsewhere in the world: Israel, Sweden, Denmark, and Canada to name a few. Looking more “locally”, each state might have their own way of looking at this. Texas, for example, passed a statute saying that before you “go to guardianship” you have to tell The State why Supported Decision-Making doesn’t work in that person’s case? Supported Decision-Making is recognized as a less restrictive alternative to guardianship in Texas.
Anyone can draft a Supported Decision-Making agreement. There is no fee. This is simply an agreement saying, “I’m a person with a disability, I’m going to rely on these people, they’ve agreed to support me.” So, when you talk about the ability to make decisions, it’s not really so much just the ability to make those decisions, but the willingness of third parties to recognize those decisions. To that end, the agreement simply lets all know and understand that “you (the person with the disability) need to make your own decisions, I (the person assisting you) am never going to go to court and take away your rights to make those decisions, but I want to help you make those decisions and, if you agree, do so.”
Michael Lincoln is the first person in Florida who has had his rights restored based on a Supported Decision-Making agreement.
Helpful Articles
- “Instruction Manual” for Your Child with Special Needs [3]
- Guardianship: A Basic Understanding for Parents [4]
- Person-Ventured Entrepreneurship: What Do You Know About Entrepreneurship [5]
- What Are Pre-Employment Skills and How Does My Child Get Them? [6]
- Where to Go if Your Child Needs a Job or Help with Post High School Education [7]
- Parenting Your Young Adult Through Their First Employment Experiences [8]
- Preparing for the First Apartment: Beyond Home Furnishings and Domestic Supplies [9]
- Independence and Self-Advocacy [10]
- College Bound: A Journey to Independence [10]
- Group Homes: Can My Experience Help You? [11]
- Teaching Financial Independence The Building Blocks of Financial Literacy [12]
- Financial Planning: For Those Who Are at the Starting Line [13]
- How Can My Child Be Independent? [14]
- How to Find Your Special Child’s Spark? [15]
- Shining a Light on Sunflower Bakery Presented by Bus 52 [16]
- Peaceful Fruits: Paving The Way for Socially Good Partnerships [17]
- Apps for Supporting Independence: The Transition to Adulthood [18]